We were taken to perinatal testing to see the cardiologist, Dr. Bott, at 3pm. The echo was done just like an abdominal ultrasound, they just used additional features. It took over an hour. Maya's heart looked perfectly normal and sounded just find. Bobby's heart looked structurally normal, which is great news. His heartbeat was still arythmic and the signs of SVT were still there. (In fact, the monitoring from last night and this morning both sucked because the arythmia was so present and the SVT was back). The monitoring was fairly quiet, but at the end, the doctor said that he thinks Bobby will be fine. That the SVT is not severe enough to put him into heart failure at this point. That he has seen babies have the arythmia that Bobby currently has go 10+ weeks with no issues. He cannot tell us why this is happening. There are no external signs as to why. He cant see any internal reasons as to why. So, at this point, they seem to think that it will continue throughout the next 10 weeks and will resolve upon birth. And if it doesnt, fixing a heart issue in a full term baby is much better than in a 26w one. But he was very optimistic.
Dr Bailey just came in and said that he spoke to Dr Bott, who wants to continue my current dosage of medications and have be ultrasounded every few days to check for hydrops (fluid on the heart/lungs). Dr B said that he is still hopeful that we are going home in 12 days but that he wont make that official until we see how Bobby progresses and watch his heart ultrasounds for the hydrops. The problem is that he doesnt want me to have to come to the hospital twice a week and put extra pressure on my cerclage by traveling and sitting. But he said that these are all things to discuss in 10 days or so. That he'd rather see what is going on and have some basis for how to proceed versus dealing in hypotheticals right now.
He also said that he is amazed that I've been here so long and havent complained once. As sad as I am to be here and not home... As much as I want to go home... I cant complain- my babies are still alive and inside of me. I know the alternative. I cant complain about that. I may break down to Peter and I may vent here, but ultimately, I'm just thankful for one more day.
I was talking to Sarah today and we were both commenting that we cant believe tomorrow is September 1st. September... Fall is soon going to be here... The babies are going to be here in a little over 2 months... Wow...
September 1st... 19 months since my first son was born...
September 1st... 41 days in the hospital.
I am tired. Emotionally and physically. My body hurts. My back, hips, and bum ache. My fingers are starting to bruise. My arms are black and blue. My heart is fearful. My mind is struggling to process everything and I just feel so tired. I am so very grateful- please dont get me wrong. Each day is such a blessing. As I lay here, feeling them engaging in a circus in my belly, I feel such joy that they are okay and playing together. I look in awe at my growing belly and the stretchmarks that go on forever. I am so thankful to have them inside and, it seems, safe. But I am so tired. I cant concentrate when people call me on the phone and I dont want to talk. Most folks dont get that. It isnt them; it is me. It is just too hard to focus. There are exceptions, like my mom and Sarah, but is because I dont have to focus. I can be a lump and they are okay with that if that is what I am at the time. My body is starting to feel the lack of movement and my muscles are starting to hurt as they become weaker and weaker. My mind tells me that, even though I am only 68 days from the full term, 36 weeks we are hoping to get and that seems so short, it feels so long. I am trying to keep my eyes on the prizes that I am lucky to carry... To stay positive... But now, adding in the concern of not going home to my bed... I want to cry. This was what I was holding out for and the fear that it wont happen... It is hard. We will do whatever is safe for the babies but this was a rainbow in the distance.
Dr B says to hold out and we will make a decision later on. To try not to worry. We will cross this bridge in 10 days. So, that is what I will hold out for. Not worrying. And Peter says that if the ultrasounding is all we need, perhaps we can go to a local hospital outpatient and have them send the reports over. We will see if that is an option. I will look into it.
Please continue your prayers for our little ones, especially that the arythmia calms itself down and disappears. This is a priority right now. Even if it doesnt disappears but calms down considerably.
All in all, we are relieved that Dr Bott basically confirmed Dr C's diagnosis and didnt find something worse. It seems that this low level SVT can continue for 10w and be okay for his heart, so that is what we are hoping.