We didnt get home until 1:30 this morning (we got to the hospital at 4:30am, so it was a long day). Maya was still under sedation when we left. Unfortunately, she isnt metabolizing the drugs quickly. She started waking up but wasnt breathing on top of the ventilator. As long as it breathes for her, they wont extubate her. It's so hard to see her this way. Because we never dealt with the vent in the beginning, watching her take such a step back (even though it wasnt really a setback and was used to help her through surgery). She has two black eyes and looks so helpless. It breaks my heart. I sat by her bedside for all of the day except for when I pumped and went to take care of Bobby. Peter was with her when I wasnt and went to work for half a day after being there all morning and then getting there in the early evening and staying all night. We almost spent the night at the hospital because he thought she might be removed from the vent, but when that became clearly not the case, we went home. It killed me to say that I wanted to go home, but I hadnt slept more than a handful of hours in 48 and my back was having spasms from a poor shoe choice for standing most of the day. I slept a good 4 hours between getting home and now and, honestly, it was so refreshing. After pumping this morning, I was able sleep another hour in between pumps. I know it doesnt sound like much but it really does help and was enough. Once Maya is safely back in her bed, things will be better. But leaving her in isolation is too hard to not stay at the hospital as much as we can.
Another sweet story... Bobby wouldnt take his bottle from me yesterday. He kept making these noises, wanting for Maya to respond. She wasnt there so it was silent. He'd suck a bit and repeat. After a few minutes, he just stopped eating. He just kept lifting his head to look at her bed. Finally, I had to move my chair so we were next to her bed and he just laid his head on my chest and watched. I had to have his feed gavaged and then he fell asleep. He repeated this with Peter, although he did finish his bottle. But he was only calmed by being by Maya's bed. Peter actually took her hat and gave it to him. Then he fell asleep and was calm. I went back in later and he was awake and he kept making his "twinning" noises and would lift and hold himself up to look at her bed, until, once again, I moved next to her bed so that he could watch it. It was so cute... and so sad...
I hope Maya is extubated and returns to her bed today... Thank you for the prayers. Please keep them coming...
What a sweet story about Bobby missing his sister! I hope Maya is breathing on her own again when you get there today.
It's good that you went home to get some sleep. You need to take care of yourself too.
awww- sweet Bobby. I am sure Maya is feeling that energy from him. I am praying for her- as always. I hope you get some rest when you can.
Dear Jesus, son of God, have mercy on me a sinner. I offer up to you your servant, Maya, and I ask you to place Your healing powers upon her and hold her in the palm of Your hand. Bless her and her family with strength and wisdom, patience, peace and grace. Amen
So sweet about Bobby. The bonds twins share is so special. I am keeping both your babes in my prayers. I hope Maya will be 100% okay as soon as possible.
Saying some prayers for Maya - she's a tough little girl, and I know she'll be chatting with her brother again soon.
i'll be thinking of little maya and hoping all goes well today.
I love the way a brother protects their sisters. Praying for Maya.
Maya is in my prayers, as are all of you.
poor bobby, missing his sister, i hope she will be back soon, im sure everything will be ok they are fighters ((big hugs)) give the babies a kiss for me :)
Aww how sweet of Bobby! I am praying for Maya that she is feeling better soon. I am sorry I know this must be very hard for you!
I am still praying for Maya - that is just the sweetest connection between them. Thinking of you all.
Ah, twinning. My niece and nephew sounded like little dolphins with their high pitched squeaks and rattles. When they got older it was a riot to watch them not only squeak at each other, but to see their faces respond. One can only imagine what the heck they were saying to each other.
Praying for you guys and these sweet little babies. Pray that Maya will be in her bed again close to her brother. Remember to get sleep for you because it wont be good for you to get sick. Praying for you!
I hope Maya won't need the vent much longer. It is so sweet that Bobby wants to be near her. Such a bond!!
That is the sweetest about Bobby missing his sister. Lord please be with Maya, help her to recover quickly and be back safe and healthy in her bed next to her brother!
Sending you & Maya prayers and many good wishes. I'm still reading, but have gotten terrible at commenting. You're in my thoughts.
What a hard day for little Maya and all of you. It just broke my heart to imagine Bobby looking over for his twin. I didn't realize they had such a close bond already. That is really special.
Still praying hard for all of you, especially Maya.
I am glad everything went well! I hope the twins are reunited today.
Sorry dear friend! Somehow I missed a days worth of checking, and all sorts of untoward stuff happens. You are all in my thoughts.
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