When I got to the hospital yesterday morning, expecting to find things as we'd left them (and hopeful that they'd be even better), I was greeted with a huge shock. Maya was in an isolette and on CPAP. From 7am until 10:30am when I arrived, she'd gone from stable to struggling to take a breath. Because she focused so much on breathing, she stopped trying to keep her temperature and, at 8am when she was checked, she'd gone from normal at 5am down to 95. They wrapped her until they could get an isolette warmed and then got her inside. She was slowly coming up and was 97 when they checked at 11:30.
The steroids wearing off were much worse than they anticipated when we'd called for a morning update. The inflammation was just too much and her throat swelled as soon as the effectiveness was gone. They tried upping the litres on her cannula, adding oxygen, but nothing. They were on the verge of reintubation but the CPAP was able to stabilize her. Even when we left late last night, she was still breathing so hard that her little tummy was caving in with each breath.
They are giving her 9 (instead of 3) doses of steroids. She had her first at 11am yesterday and is on a 12 hour cycle. Her hard breathing has caused a patch of fluid to build up in her lungs. She had several sessions of bradycardia and low oxygenation yesterday. It was another day of hell, both for her and us.
Please pray. Hard. She is such a little fighter, but we'd love it if she didnt have to fight so hard for every little step forward.
Pray for Maya. Pray.