tag:blogger.com,1999:blog-1809677799536184324.post4461364222568175138..comments2023-10-26T04:01:17.116-04:00Comments on My Life After Loss: Severely DelayedMichelehttp://www.blogger.com/profile/17681333723382119281noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-1809677799536184324.post-80871112115668861592012-03-06T03:50:55.689-05:002012-03-06T03:50:55.689-05:00Hi - I'm sorry to hear that Bobby has some spe...Hi - I'm sorry to hear that Bobby has some speech issues. You have a great plan in place, and it is wonderful you are on top of this so quickly. I wanted to share this link with you, it might give you some ideas to work into your daily activities with Bobby. Best wishes from LA.<br /><br />http://teachmetotalk.com/2008/03/02/successful-strategies-for-working-with-toddlers-with-apraxia-and-other-speech-language-difficulties/schnitzelbankhttps://www.blogger.com/profile/16353695238159527112noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-18253324174975731212012-02-28T09:23:19.103-05:002012-02-28T09:23:19.103-05:00I know as a mother, it's hard not to blame you...I know as a mother, it's hard not to blame yourself. My mother became pregnant with me 9 weeks after having my sister. She was severely anemic the whole time, and my amniotic fluid was infected when I was born. And I have a host of health issues. She blames herself. I tell her, "I wouldn't be alive otherwise!", but she still feels guilt. My son has a congenital heart defect that may require open heart surgery by the time he is in his 30s. I feel guilt- I was likely Vitamin D deficient, and I didn't know until after E was born. E was hospitalized for RSV as a newborn, and my pediatrician told me just in the past months that new research shows a deficiency during pregnancy is correlated with an infant's risk of serious RSV. I could not have known- but I still feel guilty.<br /><br />The mister was deaf until nearly the age of 5. He was severely speech delayed, and required years of ST, and despite having practically a genius IQ, was held back a year in grade school due to issues with processes auditory stimuli. As an adult, he enunciates every word, and still has problems processing information via hearing. His speech is garbled when his brain runs faster than his speech processing. He really wishes this could have been found and addressed years earlier.MrsSpockhttps://www.blogger.com/profile/10792687516201324640noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-17099572061364597682012-02-28T08:18:03.323-05:002012-02-28T08:18:03.323-05:00I'm so sorry to hear this. I would think you g...I'm so sorry to hear this. I would think you guys deserve a break after all you've been through, but I know you'll make it through this. You're all in my thoughs!Brigidhttps://www.blogger.com/profile/12506113898535830529noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-86181377907524755862012-02-28T05:32:53.346-05:002012-02-28T05:32:53.346-05:00Sweetie, I know this is so so hard, but I'm su...Sweetie, I know this is so so hard, but I'm sure with the right therapy he'll make huge progress extremely quickly! You'll see!! I'm keeping you in my thoughts and prayers. FranFranhttps://www.blogger.com/profile/05717020378275616297noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-88674277587260051492012-02-27T21:55:39.941-05:002012-02-27T21:55:39.941-05:00Burrito's evaluation in the fall said that his...Burrito's evaluation in the fall said that his speech was way, way behind. Today his teacher said that she wants to move him up to the class with kids who are .5 to 2 years older because he communicates and understands so well.<br /><br />Tamale was advanced in speech last fall, and now she's behind.<br /><br />Things change so much at this age, in all sorts of ways.<br /><br />The speech therapy will be great for Bobby. Soon he'll be talking nonstop and it will be hard to remember what it was like when he didn't -- at least it's that way for us with Tamale's severe motor delay.<br /><br />Take care.Baby Smiling In Back Seathttps://www.blogger.com/profile/06483533946303787478noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-39617975449994380452012-02-27T19:43:13.458-05:002012-02-27T19:43:13.458-05:00Oh Michele. It's very hard. I know I feel the ...Oh Michele. It's very hard. I know I feel the same way, that my little girl has paid her dues. That she's been through enough and deserves to have an easy ride of things now.<br /><br />I don't think they keep as close an eye on ex-prems here in the UK and I have no idea what Jessica's verbal age would have been at 29 months but she had hardly any speech at all. Probably not far off ten months if that. <br /><br />Interestingly, like Bobby, she tested at her chronological age or higher in other areas. Her understanding has always been good, she can identify numbers and colours and point at a whole variety of things in books. But, for a long time, she hardly spoke. She never babbled much as a baby either, she was fairly silent. She never said 'yes' for a long time (always been good at saying 'no' though, ha!) and, like Bobby, knew where the juice was, knew that she only had to ask but she just didn't ask. She still very rarely requests a drink or anything to eat. <br /><br />But, even knowing all that, it is a terribly shock to hear those words, severely delayed. It feels like a punch to the stomach especially after all our little ones have been through and the guilt of not being able to hold them inside for longer. And then additional guilt when we know that these challenges are tiny in comparison to those we could have faced. But, as you say, it is all about the fish bowl you are in.<br /><br />Sounds like you have a good plan in place and I hope that Bobby's speech will just take off. Jessica's is certainly improving week on week at the moment!Catherine Whttps://www.blogger.com/profile/01618295389400457254noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-78527339517025500592012-02-27T18:33:10.746-05:002012-02-27T18:33:10.746-05:00I totally understand how you feel. But you are gr...I totally understand how you feel. But you are great parents, and it's totally understandable that this wasn't caught until now. After all, how often do the doctors tell us that every kid develops at their own speed, and some are better at some things than others? And he is clearly really smart! So give yourself a bit of a break. You're doing a great job with them, and you've caught the problem long before it turned into a real problem. He'll be just fine. How could he not be, with you as his mother?!Queenie. . .https://www.blogger.com/profile/00666609807461763029noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-52881382540833079932012-02-27T17:23:29.508-05:002012-02-27T17:23:29.508-05:00I totally get how you feel. Sophie just spent the...I totally get how you feel. Sophie just spent the afternoon screaming through her entire PT session as they work to get her walking. The screaming is so sad, but I know it is necessary or she will fall behind physically even more. She has to work past her sensory issues. And I feel the guilt of wondering if only I could have kept them in longer ... if only ... but you know, we did keep them in a really long time, and you know Bobby is so smart. He will take off with speech therapy. Ethan got speech at 12 months and within 2 months of therapy he caught right back up with the twins and Sophie. The therapy is seriously amazing! If you have a good therapist you will see outstanding results. <br /><br />*big hugs* You're awesome and so is Bobby and he will be jabbering away in no time. I just know it.quadmomhttps://www.blogger.com/profile/17254199098599230245noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-6617544229387537772012-02-27T17:15:07.478-05:002012-02-27T17:15:07.478-05:00We do the one-on-one trips when we can, initially ...We do the one-on-one trips when we can, initially because we wanted them to realize that they are unique people, not just twins!<br /><br />They actually asked that Maya be included in the therapy because he responds better to people when she is with him (in new environments). So we shall see!Michelehttps://www.blogger.com/profile/17681333723382119281noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-85027287550577267722012-02-27T17:03:39.999-05:002012-02-27T17:03:39.999-05:00I understand a lot of what you are sharing, includ...I understand a lot of what you are sharing, including all of the EI stuff (because you know where I am located in country, too). Peanut was way behind, and now, 7 months into it, they're close to ending the speech therapy because she's really picked it up. <br /><br />It was hard and heartbreaking at first. There will tantrums and frustrations. We, as parents, had to unlearn some of the things we were doing, and had worked splendidly with Lil Pumpkin.<br /><br />But in a couple of months, you are going to notice a difference. And in 6 months, a huge one. He's smart and has developed awesome coping skills to get around it. Now he needs a bit of help in learning what he was able to skirt around. <br /><br />One of the things that was very helpful for us was to not have LP present for the speech therapy sessions. So if you can have someone take her out on a walk, or to their home, for an hour, it will pay dividends. Occasionally our speech therapist wants LP there so she can assess how Peanut is doing when her very talkative sister is present.<br /><br />Also helpful . . . outings to the grocery store, etc. with JUST Peanut. WOW, holy language explosion and teachable moments. Give it a try...have Peter or a g'rent watch Maya while you run errands with just Bobby. We didn't think of this until we were 5 months into the speech therapy, and it's been hugely helpful.<br /><br />Text me if you need to talk. You are a tremendous, awesome, good mom. This didn't "slip by" you like dirt under his nails. You are in proactive mode now, and are about to embark on a language adventure! Remember, it will be more frustrating on some days, but adhere to the techniques they suggest. The EI people are terrific.Ms. Jhttps://www.blogger.com/profile/04734867984972785143noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-44415977266143432762012-02-27T15:41:28.998-05:002012-02-27T15:41:28.998-05:00Some years ago when I worked as a nanny I looked a...Some years ago when I worked as a nanny I looked after a little boy of two and a half who had speech difficulties. His parents engaged a speech therapist and at their very first session she asked him if he could say the word "basket". "Yes" he replied with perfect clarity and carried on doing whatever he was doing. His Mum and I were in stitches trying to keep the laughter quiet!<br /><br />His particular problem was that his brain was working faster than his mouth and he just got too frustrated trying to get all his ideas and thoughts out and so didn't try. We used similar tactics: repeating everything he said (and didn't say) and weekly speech therapy. He is a very intelligent young man now who has no problems at all communicating.<br /><br />Bobby's "problem" has been caught at just the right time. Don't blame yourself, children move at different speeds and some are talkative, some are quiet. But really, Bobby is SO lucky to belong to a family that will do everything possible to help him find his way.<br /><br />xxxBarbarahttps://www.blogger.com/profile/01484695553612265127noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-85383278335310433652012-02-27T14:40:05.782-05:002012-02-27T14:40:05.782-05:00I could have written a very similar post about my ...I could have written a very similar post about my K-Man. He is severely delayed in speech, and I know he gets frustrated because of it. He used to throw really bad tantrums, and I really do believe it was because he so badly wanted to communicate. . . but couldn't. But can't. <br /><br />Some days, I feel down about his days, but I also am so happy that he's my son, and that I'm vigilent enough to get him the help he needs. Just like you are for Bobby. You are doing everything in your power to help Bobby succeed, and at the end of the day, what else can you do? I wonder what happens to the kids with these issues who don't have parents who know about all the resources (and free resources!) available to help our children.<br /><br />K has been in speech therapy for months now, and we love his therapist, and we all look forward to the appointments. <br /><br />Thinking of you and your family.Leahhttps://www.blogger.com/profile/14912857890584533572noreply@blogger.comtag:blogger.com,1999:blog-1809677799536184324.post-18084195346766882002012-02-27T14:37:07.541-05:002012-02-27T14:37:07.541-05:00My heart hurts for you as you know I know exactly ...My heart hurts for you as you know I know exactly how you feel right now. Prayers for you and your little guy. I know that with a wonderful mother like you Bobby will be able to push past this and master the skill of speech!<br /><br />Good luck and keep us updated with his progress!<br /><br />xoxoxHillaryhttps://www.blogger.com/profile/10944360286843076465noreply@blogger.com